Fight for Emma
Hooray!
Slight setback
Thank you!
Amazing!
Updates!! Warning it’s long and random
MRI/ spinal tap/ eye exam
Optamologist/ oncologist update
Follow up
Merry Christmas!
Heading home!
Just waiting!
Just waiting!
My 3:30 wake up!
My 3:30 wake up!
Recovery with Mommy
Fight for Emma
Hooray!
Slight setback
Thank you!
Amazing!
Updates!! Warning it’s long and random
MRI/ spinal tap/ eye exam
Optamologist/ oncologist update
Follow up
Merry Christmas!
Heading home!
Just waiting!
Just waiting!
My 3:30 wake up!
My 3:30 wake up!
Recovery with Mommy
Overview

Journal Entries

Hooray!

Hooray!

June 14th, 2019

After being disappointed that Emma would have to spend her birthday at the Cleveland Clinic, it ended up being a...

0
0
0
Slight setback

Slight setback

April 07th, 2019

We had a small set back with the prosthetic eye. Emma’s eye was rotating (turning in the socket), I was...

1
0
0
Thank you!

Thank you!

March 20th, 2019

What a beautiful today! Today the genetics councilor at the Cleveland clinic told us that Emma does not carry the...

0
0
0
Amazing!

Amazing!

March 08th, 2019

Typically I do not like going to emma’s medical appts. But today was the day emma got her new eye!...

0
2
0
Updates!! Warning it’s long and random

Updates!! Warning it’s long and random

February 01st, 2019

So here is a little of what has been going on lately. We got the spinal tap results.... and it...

0
0
0
MRI/ spinal tap/ eye exam

MRI/ spinal tap/ eye exam

January 18th, 2019

(Pic taken before anesthesia/ testing) Yesterday we ventured out to the Cleveland clinic for more appts/ testing over Thursday and Friday.......

0
0
0
Optamologist/ oncologist update

Optamologist/ oncologist update

January 08th, 2019

(This pic is Emma happy as can be with her eye dr appt! She loves her nurse and opthamologist a...

0
0
0

Infection check

January 02nd, 2019

This morning we hit the road again to have Emma’s eye infection checked... finally some good news! Although the infection...

0
0
0
Follow up

Follow up

December 26th, 2018

Today we drove out to have the patch taken off and a new one placed. After the dr examined Emma,...

1
0
0
Merry Christmas!

Merry Christmas!

December 24th, 2018

Emma (and us) want to wish everyone a Merry Christmas! When I showed Emma her picture, her response was “pretty”!...

0
0
0

Overnight

December 22nd, 2018

After hours of Emma really not wanting anything and being sick, around midnight she started to feel better and took...

0
0
0
My 3:30 wake up!

My 3:30 wake up!

December 22nd, 2018

She is finally starting better and wanting juice!

0
0
0
Just waiting!

Just waiting!

December 22nd, 2018

We were clear by the dr for discharge. Waiting on some final blood work to be done. Emma says if...

0
0
0
Heading home!

Heading home!

December 22nd, 2018

We are headed home for a couple days!!! Our brave little princess did fantastic. Only thing she hated was removing...

0
0
0

Prayers are working!

December 21st, 2018

Just talked with the dr before Emma has the eye out. Great news is the left eye is ok. Right...

0
0
0
Recovery with Mommy

Recovery with Mommy

December 21st, 2018

0
0
0

Settling in for the night

December 21st, 2018

Emma is settling in for the night. We are trying to manage her pain as best as possible. Seems mommy...

0
0
0

Surgery day

December 21st, 2018

So early this morning I received a much needed text saying “ shes such an angel and God sent her...

0
0
0

Comment on this Story

Please login to comment on this story.

PB

Patricia Batten on June 15th, 2019

Prayers work - never stop and what wonderful news for sweet little Emma!

PB

Patricia Batten on April 07th, 2019

Keeping Emma and Jason and Jess in our prayers, always!

PB

Patricia Batten on March 20th, 2019

God is good, all the time. All the time, God is good - just have to believe.

PB

Patricia Batten on March 08th, 2019

What wonderful news and she is such a beautiful little lady! Thank you for sharing the update!

DS

Danielle Sorokes on January 02nd, 2019

Be strong Emma, Jess, and Jason. The Sorokes family is praying for fast healing.

CH

Caitlin Heitzenrater on December 25th, 2018

Merry Christmas Emma you look so beautiful in your Christmas dress!!❤️

PB

Patricia Batten on December 21st, 2018

Sweet baby girl and what a big day for her. Keeping you all, and the medical staff, in our hearts and prayers - every moment!

Want to receive updates on this story? Register now and follow this story to receive updates straight to your inbox!

Register Now

Sign Up to Help

Signing up for

Share This Story

Click one of the icons below to share this story and help spread the word!

Photo Gallery

1 of 22