Owen's journey
G-tube surgery
G-tube surgery
G-tube surgery
Valentine's day
Valentine's day
Surgery update
Lightning can strike twice
Lightning can strike twice
Lightning can strike twice
1/31/19
1/31/19
Surgery update
Speed bump
Extubation day!
Extubation day!
Extubation day!
1/8/19 - Surgery Day!
1/8/19 - Surgery Day!
'Tis the season
'Tis the season
'Tis the season
'Tis the season
'Tis the season
Owen's journey
G-tube surgery
G-tube surgery
G-tube surgery
Valentine's day
Valentine's day
Surgery update
Lightning can strike twice
Lightning can strike twice
Lightning can strike twice
1/31/19
1/31/19
Surgery update
Speed bump
Extubation day!
Extubation day!
Extubation day!
1/8/19 - Surgery Day!
1/8/19 - Surgery Day!
'Tis the season
'Tis the season
'Tis the season
'Tis the season
'Tis the season
Overview

Owen's journey

Baby Owen was born 11/9/18 at 5:56pm via csection at Fairview hospital. He weighed 8lbs 1oz and measured 19inches long. As many of you may know he was diagnosed with dandy walker at 19 weeks gestation. This is a brain malformation in which the cerebellum does not develop properly. It plays a role in movement and coordination. Throughout the pregnancy we had an mri and monthly ultrasounds to monitor his development. We learned he had mild-moderate ventriculomegaly and also double bones in his big toes. Thankfully not much changed throughout the pregnancy and we were left waiting until delivery for more answers.

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Latest Journal Entries

G-tube surgery

G-tube surgery

February 21st, 2019

Today Owen had his g-tube surgery. We knew for along time that this was probably coming and would most likely...

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Valentine's day

Valentine's day

February 15th, 2019

Owen gave us the best Valentine's day present ever yesterday by having yet another successful extubation. After being on a...

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Surgery update

Surgery update

February 05th, 2019

Owen successfully underwent his 3rd mandibular distraction surgery today. He is back in the NICU resting comfortably again. Thank you...

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SC

Susan Creager on February 17th, 2019

This is the best news ever! So happy for you! Hoping Owen makes a great recovery & soon! #OwenTheFighter# Stay Strong, Always prayers from Aunt Sue Uncle Barry & Megan

SC

Susan Creager on February 17th, 2019

This is the best news yet! So happy for all of you

SC

Susan Creager on February 04th, 2019

OMG! I just can't beleive this. For sure you all do not deserve this. I seriously don't know how you are holding it together but you are. You are such strong parents. You have so much love to give. You are always in our prayers and we are always thinking of you. Sending much needed prayers at this time. Just know how much you are loved. Plz keep us posted. :'(

MK

Margaret Kozlowski on January 31st, 2019

Always in my thoughts and prayers.

DG

Debbie Gilbert on January 22nd, 2019

Glad to hear everything went well! Continued prayers for all of you. Love and hugs.Aunt Debbie and Uncle Dale

BI

Beverly Israel on January 22nd, 2019

So happy to hear that his surgery went well!

SC

Susan Creager on January 19th, 2019

I am in tears :'( I can only imagine the tears and how down this must make you feel. Stay strong Alec & Jess you are the best of parents and have the strenghth to pull our little guy through this ordeal. So sorry to go thru all this again. We send our prayers and give you all the hope and well being to keep the faith. You all are so loved and I give you alot of credit that you are trucking thru this . Love you all Aunt Sue Uncle Barry & Megan

AN

Annette Nedrich on January 16th, 2019

Jessica and Alec, You both are a great team. Owen looks great, love the pictures keep up the good work. Annette

SC

Susan Creager on December 30th, 2018

So happy Owen has had a great Christmas! Such wonderful Family photos, we cant wait until we are able to come visit. Hopefully soon for us, we will be dealing with back and eye surgery. I am told the back surgery will be a very long recovery. Hope to hear soon. Good Luck Owen in your surgery little guy and we hope you pull thru with flying colors! Love and Miss you all! Auntie Sue

CI

Carly Israel-Agin on December 19th, 2018

Jessica, I cannot imagine the pain and fear. But I promise you, that you have all you need to walk through this. Use your people. Let others help with J. He is so lucky to have so many who love him. You can do this. We are all rooting for you. Sending so much love. He is ADORABLE. He is going to be your little teacher.

SC

Susan Creager on November 22nd, 2018

Happy Thanksgiving Jess Alec Jameson & Owen!!! We love you & can't
wait till you come home to see you! Sending all our Love and prayers.

JK

Julie Kapanke on November 21st, 2018

love the new photos! mohawk ! :)

CR

Cheryl Richey on November 17th, 2018

Was not aware of Owens problems. God bless you all,and pray that all goes well with your precious little one.May God watch over him as well as your family.

VW

Voni Woods on November 14th, 2018

Thank you for sharing your beautiful baby’s story with us. You are all in my prayers daily. We so look forward to good news and continued improvement. ❤️

SC

Susan Creager on November 14th, 2018

Always in our thoughts and prayers. We love you all and Sending prayers

AS

Amber Sauer on November 13th, 2018

Everyday I wil pray for you baby Owen, but no matter what you are speacil and loved!! ❤❤

LD

Lori Dachtyl on November 13th, 2018

Thanks for letting us share in this very personal journey with you. Always in my thoughts and prayers. Love Lori

CB

Cheyanne Burk on November 13th, 2018

I love you sweet baby Owen! You have the best mommy and daddy standing by your side, I know you’ll get through this ❤️

AI

Alan Israel on November 13th, 2018

Thanks for sharing we care

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