Baby Owen was born 11/9/18 at 5:56pm via csection at Fairview hospital. He weighed 8lbs 1oz and measured 19inches long. As many of you may know he was diagnosed with dandy walker at 19 weeks gestation. This is a brain malformation in which the cerebellum does not develop properly. It plays a role in movement and coordination. Throughout the pregnancy we had an mri and monthly ultrasounds to monitor his development. We learned he had mild-moderate ventriculomegaly and also double bones in his big toes. Thankfully not much changed throughout the pregnancy and we were left waiting until delivery for more answers.
We are home!!!
April 03rd, 2019
After 144 days in the NICU we finally made it home! Owen has been so excited to experience life outside...
Light at the end of the tunnel
March 18th, 2019
A discharge date has finally been mentioned, although after rounds yesterday it may be pushed back a little. We were...
March 02nd, 2019
Owen has been doing well this past week. We have been using his g-tube for feedings and to administer medications....
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