Baby Owen was born 11/9/18 at 5:56pm via csection at Fairview hospital. He weighed 8lbs 1oz and measured 19inches long. As many of you may know he was diagnosed with dandy walker at 19 weeks gestation. This is a brain malformation in which the cerebellum does not develop properly. It plays a role in movement and coordination. Throughout the pregnancy we had an mri and monthly ultrasounds to monitor his development. We learned he had mild-moderate ventriculomegaly and also double bones in his big toes. Thankfully not much changed throughout the pregnancy and we were left waiting until delivery for more answers.
February 21st, 2019
Today Owen had his g-tube surgery. We knew for along time that this was probably coming and would most likely...
February 15th, 2019
Owen gave us the best Valentine's day present ever yesterday by having yet another successful extubation. After being on a...
February 05th, 2019
Owen successfully underwent his 3rd mandibular distraction surgery today. He is back in the NICU resting comfortably again. Thank you...
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